{"id":256,"date":"2025-01-13T11:57:28","date_gmt":"2025-01-13T10:57:28","guid":{"rendered":"https:\/\/aviyzcf2oz.ph-expertise.com\/?page_id=256"},"modified":"2025-06-11T10:32:20","modified_gmt":"2025-06-11T08:32:20","slug":"institutionnels","status":"publish","type":"page","link":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/page-d-exemple\/ressources\/institutionnels\/","title":{"rendered":"Institutionnels"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"256\" class=\"elementor elementor-256\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a4d8b10 e-flex e-con-boxed e-con e-parent\" data-id=\"a4d8b10\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-d517fdd elementor-widget elementor-widget-text-editor\" data-id=\"d517fdd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h4>Contexte<\/h4>\n<p><!-- \/wp:heading --><!-- wp:paragraph --><\/p>\n<p>En Alg\u00e9rie, les <span style=\"color: #993366;\"><strong>maladies rares<\/strong> <\/span>touchent pr\u00e8s de <span style=\"color: #993366;\"><strong>2 millions de personnes<\/strong><\/span>, soit environ <span style=\"color: #993366;\"><strong>5 % de la population<\/strong><\/span>. Pourtant, la prise en charge reste insuffisante face \u00e0 plusieurs d\u00e9fis<strong>&nbsp;:<\/strong><\/p>\n<ul>\n<li>Moins de <span style=\"color: #993366;\"><strong>10 % des patients<\/strong> <\/span>re\u00e7oivent un diagnostic pr\u00e9cis en temps opportun, ce qui entra\u00eene une <span style=\"color: #993366;\"><strong>errance diagnostique<\/strong><\/span> de plusieurs ann\u00e9es<\/li>\n<li>Repr\u00e9sentant environ 5% de la population totale<\/li>\n<li>Les co\u00fbts de prise en charge sont \u00e9lev\u00e9s : entre <span style=\"color: #993366;\"><strong>2 et 4 millions de dinars par an et par patient<sup>1<\/sup><\/strong><\/span>, ce qui p\u00e8se lourdement sur le syst\u00e8me de sant\u00e9 alg\u00e9rien<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<p><!-- \/wp:list-item --><!-- wp:list-item --><\/p>\n<p><!-- \/wp:list-item --><!-- wp:list-item --><\/p>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p>Face \u00e0 cette situation, le gouvernement a pris des mesures importantes :<\/p>\n<ul>\n<li>En f\u00e9vrier 2024, la liste des maladies rares est pass\u00e9e de 28 \u00e0 <span style=\"color: #993366;\"><strong>109 d\u00e9nominations <\/strong><\/span>reconnues par le minist\u00e8re de la Sant\u00e9<\/li>\n<li>En novembre 2023, une convention entre l\u2019Institut National de Sant\u00e9 publique et la Soci\u00e9t\u00e9 Alg\u00e9rienne de Pneumologie a \u00e9t\u00e9 sign\u00e9e pour lancer une <strong><span style=\"color: #993366;\">enqu\u00eate sur les maladies rares<\/span> <\/strong>et<span style=\"color: #993366;\"> <strong>\u00e9laborer un registre national<\/strong><sup>2<\/sup><\/span><\/li>\n<li>En 2022 le Pr\u00e9sident de la R\u00e9publique a demand\u00e9 la mise en \u0153uvre d&rsquo;une s\u00e9rie de mesures d\u00e9di\u00e9es \u00e0 la cr\u00e9ation d\u2019un <span style=\"color: #993366;\"><strong>Plan national des maladies rares<\/strong><\/span><\/li>\n<li>En juin 2022, <span style=\"color: #993366;\"><strong>14 milliards de dinars <\/strong><\/span>ont \u00e9t\u00e9 allou\u00e9s \u00e0 la Pharmacie Centrale des h\u00f4pitaux pour l\u2019achat de m\u00e9dicaments destin\u00e9s aux maladies rares<sup>2<\/sup>\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<li style=\"list-style-type: none;\">&nbsp;<\/li>\n<\/ul>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<p>Malgr\u00e9 ces avanc\u00e9es, des <strong><span style=\"color: #993366;\">freins majeurs<\/span><\/strong> persistent et n\u00e9cessitent une r\u00e9ponse structur\u00e9e.<\/p>\n<h4><b>Les freins actuels au d\u00e9ploiement d\u2019un plan national<\/b><\/h4>\n<p><!-- \/wp:heading --><!-- wp:paragraph --><\/p>\n<p>Malgr\u00e9 l&rsquo;engagement r\u00e9cent du gouvernement alg\u00e9rien pour am\u00e9liorer la prise en charge des maladies rares, plusieurs d\u00e9fis freinent le d\u00e9veloppement d&rsquo;un plan national<\/p>\n<ul>\n<li><b>L\u2019absence de structures d\u00e9di\u00e9es pour la prise en charge th\u00e9rapeutique<\/b>\n<ul>\n<li>Nombre laboratoires de diagnostic limit\u00e9 en Alg\u00e9rie<\/li>\n<li>Absence de centres de r\u00e9f\u00e9rences<\/li>\n<li>Acc\u00e8s aux m\u00e9dicaments limit\u00e9 : de nombreux traitements essentiels n\u2019\u00e9tant pas encore disponibles<\/li>\n<\/ul>\n<\/li>\n<li><b>Le manque de coordination des actions<\/b>\n<ul>\n<li>Manque de coordination des sp\u00e9cialit\u00e9s et des centres hospitaliers<\/li>\n<li>Manque de formation continue pour le personnel m\u00e9dical<\/li>\n<\/ul>\n<\/li>\n<li>\n<p><b>Le co\u00fbt \u00e9lev\u00e9 des traitements pour le syst\u00e8me de sant\u00e9 <\/b><\/p>\n<ul>\n<li>\n<p><b><\/b>Sans une strat\u00e9gie claire ou des partenaires, il sera difficile de mobiliser les ressources n\u00e9cessaires pour assurer une couverture compl\u00e8te des maladies rares<\/p>\n<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<h4><b>La mise en place d\u2019un projet pilote : une r\u00e9ponse strat\u00e9gique <br><\/b><\/h4>\n<p>Pour relever ces d\u00e9fis, <strong>toutes les parties prenantes<\/strong> (professionnels de sant\u00e9, instances publiques et associations de patients) se sont accord\u00e9es pour lancer un <strong>projet pilote<\/strong> d\u00e9di\u00e9 aux <strong>maladies rares pulmonaires<\/strong>.<\/p>\n<h5><strong>Pourquoi un projet pilote ?<\/strong><\/h5>\n<p>Un projet pilote est une approche reconnue en sant\u00e9 publique qui permet :<\/p>\n<ul>\n<li><strong>D\u2019identifier les besoins prioritaires<\/strong> et les principaux d\u00e9fis \u00e0 surmonter,<\/li>\n<li><strong>De structurer une r\u00e9ponse adapt\u00e9e<\/strong>, claire et r\u00e9alisable,<\/li>\n<li><strong>D\u2019optimiser les ressources disponibles<\/strong>, en les allouant progressivement et efficacement,<\/li>\n<li><strong>De tester un mod\u00e8le reproductible<\/strong>, facilement d\u00e9ployable \u00e0 plus grande \u00e9chelle<\/li>\n<\/ul>\n<h5><strong>Pourquoi un projet pilote sur les maladies rares pulmonaires ?<\/strong><\/h5>\n<p>Ce projet pilote pr\u00e9sente des avantages strat\u00e9giques pour l\u2019Alg\u00e9rie :<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6692791 e-con-full e-flex e-con e-parent\" data-id=\"6692791\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6b1e0c2 elementor-widget elementor-widget-n-accordion\" data-id=\"6b1e0c2\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;default_state&quot;:&quot;expanded&quot;,&quot;max_items_expended&quot;:&quot;one&quot;,&quot;n_accordion_animation_duration&quot;:{&quot;unit&quot;:&quot;ms&quot;,&quot;size&quot;:400,&quot;sizes&quot;:[]}}\" data-widget_type=\"nested-accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-n-accordion\" aria-label=\"Accordion. Open links with Enter or Space, close with Escape, and navigate with Arrow Keys\">\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1120\" class=\"e-n-accordion-item\" open>\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"1\" tabindex=\"0\" aria-expanded=\"true\" aria-controls=\"e-n-accordion-item-1120\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> 1. Un fardeau \u00e9pid\u00e9miologique majeur <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1120\" class=\"elementor-element elementor-element-1eabbc2 e-con-full e-flex e-con e-child\" data-id=\"1eabbc2\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1120\" class=\"elementor-element elementor-element-d2b28a0 e-flex e-con-boxed e-con e-child\" data-id=\"d2b28a0\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-be4fb7b elementor-widget elementor-widget-text-editor\" data-id=\"be4fb7b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Les maladies rares pulmonaires repr\u00e9sentent une cause importante de <strong>mortalit\u00e9 et de morbidit\u00e9<\/strong>. Elles sont aggrav\u00e9es par des facteurs environnementaux comme la <strong>pollution<\/strong>, le <strong>tabagisme<\/strong> et l\u2019urbanisation rapide, ce qui augmente la pression sur le syst\u00e8me de sant\u00e9.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1121\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"2\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1121\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> 2. Une sensibilisation d\u00e9j\u00e0 existante <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1121\" class=\"elementor-element elementor-element-de551b4 e-con-full e-flex e-con e-child\" data-id=\"de551b4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1121\" class=\"elementor-element elementor-element-6d651a6 e-flex e-con-boxed e-con e-child\" data-id=\"6d651a6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a05bae7 elementor-widget elementor-widget-text-editor\" data-id=\"a05bae7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Certaines pathologies, comme la <strong>mucoviscidose<\/strong>, b\u00e9n\u00e9ficient d\u00e9j\u00e0 d\u2019une visibilit\u00e9 m\u00e9diatique et de campagnes de sensibilisation. Cette reconnaissance publique permet d\u2019amplifier l\u2019impact des actions locales.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1122\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"3\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1122\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> 3. Une implications des acteurs cl\u00e9s <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1122\" class=\"elementor-element elementor-element-6d6f601 e-con-full e-flex e-con e-child\" data-id=\"6d6f601\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1122\" class=\"elementor-element elementor-element-fbb34ef e-flex e-con-boxed e-con e-child\" data-id=\"fbb34ef\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9106b97 elementor-widget elementor-widget-text-editor\" data-id=\"9106b97\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La <strong>Soci\u00e9t\u00e9 Alg\u00e9rienne de Pneumologie<\/strong>, sous l\u2019impulsion de son Pr\u00e9sident, le Pr <strong>Merzak Gharnaout<\/strong>, et avec le soutien de <strong>Boehringer Ingelheim<\/strong>, coordonne cette initiative pour proposer une <strong>r\u00e9ponse int\u00e9gr\u00e9e et efficace<\/strong>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1123\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"4\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1123\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> 4. Des opportunit\u00e9es de collaborations internationales <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1123\" class=\"elementor-element elementor-element-caf0cd6 e-flex e-con-boxed e-con e-child\" data-id=\"caf0cd6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1123\" class=\"elementor-element elementor-element-1d82ffa e-con-full e-flex e-con e-child\" data-id=\"1d82ffa\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-48d7722 elementor-widget elementor-widget-text-editor\" data-id=\"48d7722\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Ce projet s\u2019inscrit dans une priorit\u00e9 mondiale et ouvre la porte \u00e0 des collaborations avec des initiatives comme les <strong>R\u00e9seaux Europ\u00e9ens de R\u00e9f\u00e9rence (ERNs)<\/strong>. Cela permet de b\u00e9n\u00e9ficier :<\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>D\u2019un acc\u00e8s aux <strong>innovations th\u00e9rapeutiques<\/strong>,<\/li>\n<li>De ressources sp\u00e9cialis\u00e9es,<\/li>\n<li>De <strong>formations adapt\u00e9es<\/strong> pour les professionnels de sant\u00e9.<\/li>\n<\/ul>\n<\/li>\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-66d1112 e-flex e-con-boxed e-con e-parent\" data-id=\"66d1112\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a27360b elementor-widget elementor-widget-text-editor\" data-id=\"a27360b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>En conclusion, ce projet pilote repr\u00e9sente une <strong>premi\u00e8re \u00e9tape essentielle<\/strong> pour r\u00e9pondre aux besoins des patients et b\u00e2tir un <strong>Plan National des Maladies Rares<\/strong>.<\/p>\n<p><!-- \/wp:heading --><!-- wp:paragraph --><\/p>\n<p><em><a href=\"https:\/\/radioalgerie.dz\/news\/fr\/article\/20210228\/207853.html\">(1) https:\/\/radioalgerie.dz\/news\/fr\/article\/20210228\/207853.html<\/a><br \/><\/em><a href=\"https:\/\/www.aps.dz\/sante-science-technologie\/139175-maladies-rares-12-milliards-da-alloues-a-la-prise-en-charge-des-maladies-rares\"><em>(2) https:\/\/www.aps.dz\/sante-science-technologie\/139175-maladies-rares-12-milliards-da-alloues-a-la-prise-en-charge-des-maladies-rares<\/em><\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Contexte En Alg\u00e9rie, les maladies rares touchent pr\u00e8s de 2 millions de personnes, soit environ 5 % de la population. Pourtant, la prise en charge reste insuffisante face \u00e0 plusieurs d\u00e9fis&nbsp;: Moins de 10 % des patients re\u00e7oivent un diagnostic pr\u00e9cis en temps opportun, ce qui entra\u00eene une errance diagnostique de plusieurs ann\u00e9es Repr\u00e9sentant environ [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":125,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-256","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/pages\/256","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/comments?post=256"}],"version-history":[{"count":25,"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/pages\/256\/revisions"}],"predecessor-version":[{"id":372,"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/pages\/256\/revisions\/372"}],"up":[{"embeddable":true,"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/pages\/125"}],"wp:attachment":[{"href":"https:\/\/aviyzcf2oz.ph-expertise.com\/index.php\/wp-json\/wp\/v2\/media?parent=256"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}